Publication
Expressions of interest: Patient and Public Involvement in the Implementation Oversight Group of the new Rare Disease Strategy
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From: Department of Health
- Published on: 19 January 2026
- Last updated on: 19 January 2026
Expression of Interest Form for Lived Experience Representatives National Rare Disease Strategy
Download link for
Download
This form can be submitted by email, or by post to the address below.
Rare Diseases and Sexual Health Unit
- Address:
- Rare Diseases and Sexual Health Unit, Department of Health, 50-58 Lower Baggot Steet, Dublin 2, D02 XW14
Written motivation statements should be attached to emails as a document. Recorded statements should be included in emails as a file link via WeTransfer or other software.
Please contact rarediseasestrategy@health.gov.ie if you require assistance in completing the form.