The Data Sharing and Governance Act (DSGA) Framework for sharing data builds upon the Data Sharing and Governance Act 2019
by setting out a common set of practices for all Public Bodies to follow when they wish to use the Act as their legal basis for sharing data. Under the Framework, Data Sharing Agreements between public bodies for the purpose of sharing personal data will be made available for public consultation for a period of 28 days. A full list of these consultations is available here.
What we are consulting on
The Department of Social Protection is intending to enter into a Data Sharing Agreement (DSA) under the Data Sharing and Governance Act 2019
with HIQA for the sharing of data to assist HIQA to contact people in relation to the National End of Life Survey.
The National End of Life Survey aims to understand the experience of our health and social care services for people approaching the end of their life and their relatives.
The General Register Office, under the aegis of the Department of Social Protection, is sharing data to assist HIQA to contacting people to understand their experiences.
The findings will inform quality improvements within service provision in the HSE and service providers, national policy and legislation in the Department of Health and national standards and regulation in HIQA.
Please include the full DSA name “DSPHIQA 005/220711 – HIQA National End of Life Survey" in the subject line of the email. Only submissions made to this email address by the closing date will be accepted.
The proposed DSA is available for public consultation for a period of 28 days, from the 21st July 2022 to the 18th August 2022. Submissions will not be accepted once the public consultation period has expired.
What will happen to what you say
We will consider your submission and may respond. Where those proposed parties consider it appropriate, they may also amend the proposed agreement to take into account your submissions. A copy of the Data Sharing Agreement and a summary of all submissions will be sent to the Data Governance Board.