From Department of Social Protection
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The Data Sharing and Governance Act (DSGA) Framework for sharing data builds upon the Data Sharing and Governance Act 2019 by setting out a common set of practices for all Public Bodies to follow when they wish to use the Act as their legal basis for sharing data. Under the Framework, Data Sharing Agreements between public bodies for the purpose of sharing personal data will be made available for public consultation for a period of 28 days. A full list of these consultations is available here.
The Department of Social Protection is intending to enter into a Data Sharing Agreement (DSA) under the Data Sharing and Governance Act 2019 with HIQA for the sharing of data to assist HIQA to contact people in relation to the National End of Life Survey.
The National End of Life Survey aims to understand the experience of our health and social care services for people approaching the end of their life and their relatives.
The General Register Office, under the aegis of the Department of Social Protection, is sharing data to assist HIQA to contacting people to understand their experiences.
The findings will inform quality improvements within service provision in the HSE and service providers, national policy and legislation in the Department of Health and national standards and regulation in HIQA.
